SCD

neurodiversity

DSM-5

Storyteller

she created worlds that she could understand

The reserved girl in public had a loud mind. She observed the world with different eyes. Querying the whys and asking what if?

She never understood why broken things were kept that way, or why people were so cruel to each other.

She, the idealist confused with too much realism wrote stories to try and make sense of it all. Sketched pictures to visually capture thoughts that others were not allowed to see.

She, the internal 'feeler' living on an external stage, created theatre only visible to her until one day she dared to share the beauty of her SCD.

Accentuated feels once locked inside spilled out creatively, from this act she could no longer hide.

There was strength in what she once saw as weakness, and the more she shared - the stronger she became.

 

Social communication disorder (SCD) is a condition that makes it hard to talk with other people. It’s not a problem with speech. It’s also not a problem with the mechanics of language, like pronouncing words and using grammar. 

SCD impacts a specific area of language called pragmatics. This is the use of language in social interactions. 

Social communication disorder is a brain-based condition –  where the brain hasn't developed in a typical way. 

People with SCD have trouble following the “rules” of spoken communication. They may take over conversations and interrupt a lot. Some say things that are off-topic. Others hesitate to talk at all.

These challenges make it hard to connect with people — at school, on the job, or in social settings, and that can take a toll on self-esteem.

SCD is a lifelong condition.

 

It’s not clear what causes it, but it often occurs with other conditions and challenges. These include autism, trouble with reading, and language disorders. 

SCD isn’t related to intelligence. People who have it are just as smart as other people, but it can create challenges at school, at work, and in everyday life.

There is no known cause, however, a child is at higher risk if there is a family history of autism, other types of communication disorders, or a specific learning disability. 

In 1983, Rapin and Allen suggested the term "semantic-pragmatic disorder" they referred to a group of children who presented with mild autistic features and specific semantic pragmatic language problems. 

Prior to the release of the DSM-5, there was debate over the relationship between semantic-pragmatic disorder and autistic disorder, as the clinical profile of semantic-pragmatic disorder is often seen in children with high-functioning autism.

The inclusion of SCD into DSM-5 sends a signal that SCD is a valid disorder that can cause significant impairment in social and occupational functioning.

People with SCD may also struggle with talking about emotions and feelings, have problems with staying on topic. 

Social communication problems are a hallmark symptom of Autism Spectrum Disorder (ASD), however, SCD can occur in individuals who do not meet the diagnostic criteria for ASD.

Why do people have social pragmatic communication disorder? While the exact cause is unknown, some researchers believe that SPCD may have a genetic component. It may also run in families who have a history of pragmatic language difficulties.

 

People with both SCD and ASD have more than social communication difficulties; ASD also includes restricted or repetitive behaviours. Because it is considered part of an autism diagnosis, SCD cannot be diagnosed alongside ASD. However, it is important to rule out ASD before diagnosing SCD.

Growing up as an aspie/SCD kid in the seventies and eighties in Britain - no one had heard of autism (outside of psychiatry circles) anyway. Of course, those of us that are aspie/SCD didn’t even know back then. We just knew we felt different and saw the world differently from our peers.

So, in the 1980s, in the average British household, few people had heard of autism. (The film Rainman didn’t hit cinemas until 1989, and it was probably the first time many people had any kind of awareness about autism.)

Few people knew of dyslexia; and anyone perceived as being different, whether due to perceived sexuality, neurodiversity or otherwise, was subject to widespread disrespect.

      At a Glance

  • Social communication disorder (SCD) impacts conversation.

  • It’s not a problem with speech.

  • People with SCD are as smart as anyone else.

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Words by moi

v.JPG

I wanted to create this page for two reasons.

One, I've never been open publically about my diagnosis of SCD, not even with friends, and sharing personal stuff online is something I normally try to avoid. But pages on this website are concerning personal growth, so here's me...

Two, to bring awareness of SCD and ASD, both conditions run throughout my family.

It has taken me years to open up about SCD and during this time, I've learned coping mechanisms to deal with social anxiety. It isn't something that is unmanageable but can be difficult and especially challenging to talk about as it is a communication disorder. 

For years I was embarrassed, feeling weak like there was something wrong with me that was best kept secret and not discussed. I didn't feel as if I functioned correctly 'normally' like others, but I would put it down to my uniqueness in personality and pushed on ignoring the diagnosis, refusing to believe I had SCD. The system stated the problem was with me, but I didn't see it like that. I saw a crazy world that made no sense a lot of the time. It appeared broken especially in education. There was no flexibility, no empathy, no room for unique thinking. At least that's how I perceived it.

 

Into adulthood, I experienced challenges with travel, especially when alone. It wasn't logical and I tried to overcome it but even now, some days are better than others. This affected all areas of my life, from further education to employment. I struggled with 'normal' daily living due to SCD. There is no cure, no fix just coping mechanisms. Later, I developed epilepsy, which I have since found out has also been linked with ASD. 

Now, with all of the awareness of ASD and SCD, I'm learning to share my experiences and link to information that could help others. It's why I created this page, and this website - to share, build space as a sanctuary of sorts. A place of healing. The content may appear eclectic but that's only a reflection of my mental processing style mingled with curiosity - tabs all open a hundred at a time. ;o)

 

Bear with me xoxo

It is a journey.

What is social communication disorder?

FOREVER
eclectic

I do not follow any one line of opinion or philosophy. Never have. Never will.

Being an observer I notice everything. Hear the different views of opposing sides - I see where both are coming from whether I agree with their views or not. 

I'm open-minded. We are not all-knowing. Things are always changing. That is the only real set truth - change. Shifting. Re-learning. 

Science mainstream or the fringes are both valid. One for the facts, the other for thinking outside the box and expansion beyond narrow thinking.

We are all valuable. We all have something to offer the world and society.

Mainstream or not - I enjoy the process of just imagining different ways of being. Different ways of doing things, and of living. For again, change is the only constant.